Episode 25

EP 25: Ethics of DNA Marketplaces and Data Sharing with Dr Mahsa Shabani


December 24th, 2019

36 mins 53 secs

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About this Episode

Patrick talks to Dr Mahsa Shabani, a researcher at the Centre for Biomedical Ethics and Law, University of Leuven. From the golden state killer to blockchain, they discuss the latest ethical issues in genetics.

They look at data sharing and involvement of patients in genomics research, and talk about Dr Shabani’s most recent paper, which looks at the ethical concerns with motivations for those who want to make their data available for research. Asking if people are choosing to share their data for financial reasons, is this ethical?