Episode 16

EP 16 Policy Development and Patient Engagement for Rare Disease with Alistair Kent


September 6th, 2019

1 hr 7 mins 45 secs

Your Hosts

About this Episode

This week on our podcast, we speak to Alastair Kent, a world leader in policy development and patient engagement for rare disease. In this episode, we discuss how research is changing in rare conditions and what part DNA sequencing and data sharing are playing in this.