Episode 16
EP 16 Policy Development and Patient Engagement for Rare Disease with Alistair Kent
September 6th, 2019
1 hr 7 mins 45 secs
Your Hosts
About this Episode
This week on our podcast, we speak to Alastair Kent, a world leader in policy development and patient engagement for rare disease. In this episode, we discuss how research is changing in rare conditions and what part DNA sequencing and data sharing are playing in this.